

Type of Document Master's Thesis Author Xenakis, Gina Marie Author's Email Address gxenakis@vt.edu URN etd-05132009-155110 Title Living with Chordoma Online: A Thematic Analysis of User’s Experiences in an Online Cancer Support Group Degree Master of Science Department Marketing Advisory Committee
Advisor Name Title David Brinberg Committee Chair Kent Nakamoto Committee Member Kimberlee Weaver Committee Member Keywords
- Online Health Forum
- Chordoma
- Cancer Support Group
Date of Defense 2009-05-12 Availability restricted Abstract The internet has revolutionized the way people are able to seek information andexpress themselves. Many fields have been dramatically impacted by its occurrence and the
health field is no exception. It is becoming increasingly popular to participate in online
discussion forums centered on health-related topics. The goal of this research is to describe
participants’ experience of using an on-line forum focused on Chordoma, a rare form of
cancer. Analysis of free-response questionnaires filled out by members of the forum,
revealed four key themes: (a) the forum is a source of invaluable information, (b) the forum
is a source for emotional support and hope, (c) members share a unique bond that often
results in friendship, and (d) members’ involvement changes over time. Benefits obtained by
the users and implications for medical professionals are discussed.
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