ROANOKE TIMES

                         Roanoke Times
                 Copyright (c) 1995, Landmark Communications, Inc.

DATE: FRIDAY, March 23, 1990                   TAG: 9003232832
SECTION: VIRGINIA                    PAGE: B4   EDITION: EVENING 
SOURCE: Associated Press
DATELINE: FREDERICKSBURG                                LENGTH: Short


SNAFU BLOCKING MARROW DONATIONS FOR LEUKEMIA VICTIM

Inspired by a newspaper article about an ailing 2-year-old, several Fredericksburg-area residents volunteered to donate bone marrow only to become entangled in red tape and medical bureaucracy.

James N. Demotses is among those who wanted to be tested as a potential donor after The Free Lance-Star published a story in January about Jackie Lindsay, who has leukemia.

But he said continued efforts to make contact with Life Savers Foundation, a non-profit bone marrow transplant organization in California, have left him infuriated.

He began by repeatedly calling a toll-free number provided by the organization.

"After trying for weeks on end to get through, I finally got a recording that gave me another 800 number," Demotses said.

Eventually he got to talk to a person instead of a machine. But after being promised three different times that information would be sent to him through the mail, none ever arrived.

Demotses finally called and asked for a supervisor.

"I learned that the telephone answering people are part of a [commercial] firm. The supervisor refused to give me the name of her company. I told her I had asked for literature three times and gotten none. And she said, `I don't have time to talk to you' and hung up on me. I can readily understand why they have a problem.

"It's virtually impossible to become a donor, from my viewpoint," Demotses said.



 by CNB